Thursday 28 February 2008

Another day dawns


More Whizz Kidz

I had another wonderful & very interesting day yesterday at the centre yesterday. It is funny that in this type of place the world over – that there are some staff who are initially a little wary – slightly standoffish? On my first day a couple of staff although perfectly pleasant – were visibly cautions. So yesterday – I sat back – observed & waited. And what do you know. Slowly they came to me.

“Please Kate can you help me to understand how I can get “X” or “Y” to pay attention or to learn more”. Then – I knew I had been accepted. Now it was quite a challenge to explain things to some of these people. Their first language is Zulu – not English & their comprehension is not what it may seem. Couple that with my Irish accent & the way I tend to talk quite quickly & not a brilliant start. Anyway – I managed it & with a lot of simple explanation & some demonstration – they got it. It really was heartening & something I will never forget.

I spent some time in the class with the younger children. One little boy who had recently had a brain operation to control his epilepsy – had previously had quite a lot of speech. Now he struggles to speak & has only a few words that can be understood & a number of words that are difficult to decipher. He got so frustrated trying to name things or say what he wanted & so kept bursting into floods of tears. He needs Speech & Language Therapy – but his family can not afford to pay. One word he can say is please – which he does frequently while holding his arms out to be picked up & cuddled. How can a person resist – although a sponsor for his therapy would be more useful I guess.

Sarah – the tutor who is really eager to learn made a point of finding me & asking, “What can you teach me today”. So I spoke to the principal – got her duties covered for a couple of hours & did a one on one session on how to devise common sense proactive & reactive behaviour management plans. She soaked it up like a sponge & by the end of the session – with a little guidance – she had devised a plan for a child in her group. Even Blessed – the tea lady kept bringing me cups of coffee every half an hour. That’s what I call progress.

And the politics / dynamics – well – there is unrest everywhere it would seem. Some members of staff don’t get along or seemingly can’t work together – so moving people around to maximise on skill development is not easy. And promotion from group assistant to group tutor – (while it is not written anywhere) is based upon length of service rather than suitability for the job. But the new principal is working on it – though she will have anarchy if she changes things too much or too quickly.

I had drinks with my neighbours last night – they supply vegetables to 80% of the supermarkets in South Africa. They were really interested in my experiences & are totally genuine giving people. Consequently they have not only offered to supply each child with a free box of vegetables every day to take home. (Many of the kids have very poor diets) But have also offered to look at any funding proposals for potential sponsorship of children & to pass funding proposals to other business contacts. Even with the vegetable donation alone – the gratitude shown to me was immense. I was hailed at a hero & an ace fund raiser!

For every child that the centre caters for there are many many more that are out of school - who would benefit form the service – but whose families can not afford the fees. The centre has assessed a number of children who are suitable – but have yet to start because sponsors have not been found. The cost per year is 15.000 rands a year - just over £1.000. Doesn’t sound a lot - but is a lot of money to the local people. I feel a “direct debit” coming on!

All in all I had another awesome day. And there is something quite refreshing in “getting back to basics”. I had planned to give myself a week off next week – but will do a couple more days at the centre – in between going on Safari. Sitting on the beach while nice – pales into insignificance by comparison.

I was given allegedly better directions to get back yesterday. Given that I am getting quite blaze about my navigation abilities – I decide to disregard my known route & go back the “much easier” route that had been described to me. Oh my God! What a hairy scary experience. I am not sure if I made a mistake (quite likely) of if the directions were wrong. But I didn’t pick up the freeway & ended up driving through the worst area in Durban city. The traffic was at a standstill – there were hawkers everywhere. People coming up to the window of the car & trying to sell you stuff. My neighbours the day before – had told me to “never drive there”. They said that it is not unusual for the guys selling stuff to have a knife of a gun & to rob you right there in the middle of the city. I locked the door & decided that rather than look like a tourist – I would look mean. So I made my best / meanest “Belfast Bitch” face – stared them down & despite their persistence in attracting my attention & trying to sell me crap – I was having none of it. I still didn’t manage to find the N2 – the main freeway north – but found my way back regardless. Frightening – but strangely liberating also. Although – I will do my best to avoid doing that again!!


I may not have time to update the blog again until the end of next week. But rest assured – I will be having a great time. I want to say a huge thank you to all who read the blog & who have left comments. Knowing that my friends & family on the other side of the world are following my adventure – is good for my soul.

Tuesday 26 February 2008

Whizz Kids



A little background.

In South Africa the government have an inclusive educational policy. They also have State Special Schools - but where possible - children a catered for within the mainstream system. Obviously a lot of kids don't make it in mainstream - then they go to the special schools. Now special schools are not (by law) allowed to have criteria for admission - but what they do do - is to assess children & say - "Sorry - we don't have a programme for your child". From what I can gather - this is a regular occurrence & tends to happen to those young children who have no verbal communication & Autistic Spectrum Disorder.

So Whizz Kids is a day facility for non-verbal children. It caters for between 15 - 20 children. It is a beautiful building in a rural location - though resources are sparse. It is run solely on donations - is not funded at all by the government & families who want their child to attend must pay. If families can't pay & their child have been rejected by at a special school - they get nothing. Each group at the centre has about 6 - 8 children of various ages & almost all the young people I saw - had Autistic Spectrum Disorder.(A few had Cerebral Palsy) It is not a school as such - more like an old Social Educational Centre?

The only qualified "educator / teacher" is Deborah - the new principal. All the other facilitators are not qualified educators - some have barely had a basic education themselves.But what a bunch of dedicated folk. Truly great - I spent a lot of time today with Sarah who is one of the best group facilitators I have seen in a long time. Some years ago she did some in service training on IABA - and now is seen as a bit of an expert. She greeted me with enthusiasm & wanted to know everything I could possibly tell her. I spent 1/2 the day with her group & in particular was asked to consult for 2 children. A 14 year old boy who was noise sensitive & a 7 year old girl who is tactile defensive. Sarah hung on to my every word as gospel.

I found myself becoming a bit apprehensive giving advise without a thorough assessment - but while children can access specialists within the service - they can only do so if (1) - The parents want it. (2) - The parents can afford to pay extra on top of the regular fees. So I did what I could - gave some guidance & marvelled at the way Sarah listened so intently.

In between times - I supported a boy who had 3 tonic clonic seizures in 10 minutes. I was really quite concerned as he was lay on his back - was convulsing very intensely & no sooner had he come out of one seizure - he went into another. I asked if he was prescribed any rescue medication - but it would appear that he wasn't. And it would also appear that his doctor doesn't think he has epilepsy? I have been asked to write a description of what I witnessed to support the family in obtaining medical support. Although I was told that there are no Paediatric Neurologists in this area - so who knows how this boy & his family will access specialist epilepsy support / intervention.

The step father of twin boys aged 14 -0 who attend the centre came in today. He was watching how the Speech & Language Therapist was teaching the boys to wash their face. He had heard I was visiting & asked to meet with me. The family are really struggling. The boys mother has had a serious stroke - which has left him as the main caregiver to his wife & the twins. Consequently his business is about to fold & he is worried because thay can no longer afford the centre fees or the medication fees for the boys. He is trying to obtain a sponsor so that the boys can continue to attend Whizz Kids & get their medication. I anticipated that he may want to ask me specific questions - but he just wanted to tell his story. My heart broke for him - though I admire his determination greatly.

I had a great day - felt really valued & as well as spending the remainder of this week there - I hope to fit in a few more days at the end of my stay. In fact - I could work there for a month no problem - but alas - I have other commitments.

Will update you all at the end of the week.

Monday 25 February 2008

Clarity & Relaxation - Bliss


The Clarity??

Yesterday (Sunday) I fretted a bit. Some of the projects that have been promised & confirmed - I was still awaiting confirmation of dates. I mentioned my frustration to Steve & Nita (my neighbours) to which they responded with, "Welcome to Africa". Things do happen a bit slow & there is no point hassling folk. Being me though- this laid back approach has a tendency to increase my blood pressure. But then - I got a call from Margi - she is s Occupational Therapist who is in private practice & inputs into a day service for complex non verbal children with severe learning disabilities. So it is all sorted - I spend the next few days there. They have already identified a couple of children that they want some help with? Agghhhh!!!! I hope that I can deliver.

The Relaxation?

Its the view that does it for me. Last night having gone out to dinner with my neighbours - I sat on the balcony -played my guitar (quite badly) & supped some very good South African wine. The moon reflected off the sea & brought an unusual lightness to the area. Almost as though the dark was too dark & so the moon lit up - rose from level with the horizon to high in the in the sky & gave us one last look at the sea. The picture doesn't quite do it justice - but it brought me a lovely sense of relaxation. What bliss.

Sunday 24 February 2008

Settling in?


It is Sunday morning here & I have found a fabulous internet cafe in an enormous shopping center called Gateway. It makes the Merry Hill seem like a row of corner shops.

Yesterday I spent the day with Charlotte - my contact from the University of KwaZulu-Natal. (Charlotte -me & one of her daughters above) Charlotte lectures on the diploma - degree & masters nurse training course. She was absolutely fantastic - really put herself out for me & with her lovely daughters - took me on a guided tour of the Durban & surrounding areas. She has me for 7 days as of Monday 10th March. I am facilitating a seminar on Saturday 15th for a large group of undergraduate & post graduate nurses. The more I hear about services here - the more obvious it becomes that people with Learning Disabilities are not on the governments agenda. There is no dedicated training as far as I can establish. Children with LD - if they receive any input - are loosely catered for by Educational Psychologists. When I asked "what happens when they leave school" - I didn't get much of an answer. The governmental post school provision is limited - patchy & institutional. I asked Charlotte if I could visit somewhere that caters for adults. She wanted to save me the distress as she said that "Those places are really not nice Kate". I will work on her?

We drove round the city - spent a while at an African Craft market (I bought an apron - still thinking about cooking - how sad am I?) I rummaged around & we all ate from the Hawker stalls. What did I have? A Greek cheese & spinach pie. Given how often I go to Greece - God knows why I choose Greek food in Africa. Anyway - it was very nice. We supped Frappes by the Marina in Durban City & talked nonstop for hours.

The weather is glorious - really hot & very humid. I can't quite believe that I am here. I mean - I find myself driving around & checking myself & saying out loud - "Bloody Nora - I am driving a car alone in Africa & loving it". Last night I went to a nice Italian restaurant alone. I said I wasn't going to do that because I would look like a saddo. But the restaurant was 5 minutes away - I have been before & is within the safe enclave of Umdloti where I am staying. I resisted the Oysters - had muscles & steak instead. And in between courses I read a text book on Challenging Behavior. I can honestly say that I have never read a text book in such a fantastic location before.

I have given myself a week off W/C 3rd March - and hope to organise a Safari for a few days & a bit of sight seeing.

I do love it here & being off the hamsters wheel of life - even for just 4 weeks is so so needed.

Lets see what tomorrow brings?

Whatever it brings - I will cherish it.

Friday 22 February 2008

Made it


Well - what a journey. Got a very nice man to take a photo of me at Heathrow airport - but I can't load it at this PC in the local estate agents. (No memory cards - memory sticks etc allowed) Had a long wait at the airport & felt a bit sad & a bit excited & a bit of all sorts. Thankfully - the flight was on time. Drank far too much red wine on the flight. Not like me on long haul trips. Woke with my nose squashed against the window at 5.30am. So needless to say I don't look or feel my best today.

Got to Durban fine - though i brought the wrong papers for the hire car - without the one I should have had - they were not going to give me the car. Thankfully I had my laptop & had to crank it up - save the relevant paperwork onto my dongle - give it to a member of staff & they printed it off. What a drama. Got some tiny little canary yellow squashed little car. The steering is heavy - but it is fine. Left the airpoort - driving down the freeway & kept saying out loud, "God Damn it - I am in Africa". Can't quite believe it. Can't quite believe I am here. Feeling confident - I decided to exit the motorway early & take the scenic route. Big mistake - spent 25 minutes driving round in circles in a massive shopping complex. I will know next time?

The weather is glorious - about 30 degrees & not a cloud in the sky. My hair has assummed the usual humidity induced curly mop. No point in doing anything with it & it kinda suits the rough & ready way I feel today.

Been to get some porvisions - Bacon - eggs - wine - cheese - high energy drink - but no cream eggs to be found. Still - I found some Turkish delight to munch on later.

Meeting Charlotte tomorrow from the University & she will help me get some sense of direction. And so it begins - the great African Adventure.

Monday 18 February 2008

Drawing Near

Only 3 more days until I leave & I have an odd sense of "Oh my God" about me. I keep thinking I have forgotten something & I know I have heaps of stuff to do before I go. And I have acquired / adoped a cat - which is beautiful - but is one more thing to think about & look after.

The suitcase is overflowing with music books & texts for the teaching. As for clothes - I have lost so much weight of late - that all my clothes are falling off me. So I feel a size 8 - 10 shopping trip in a shopping Mall near Durban coming on.

My schedule is 75% sorted - the rest will fall into place when I am there.

2 more days at work & there is no turning back!!

Kate